Psoriasis Resource Directory
If you have psoriasis, you may need extra support in addition to your healthcare team. Blogs, nonprofits, and online communities can offer information to help you manage your condition.
Resources like these can provide you with lifestyle advice, emotional support, and educational information from experts or others with psoriasis. You can ask your doctor what organizations he suggests, or you can find them online.
These resources can help you learn more and gain different perspectives. But remember that information online is not medical advice. When viewing information online, it’s important to ask yourself:
- Who manages this website? What are their intentions?
- Are they well recognized and respected?
- Are they trying to sell me something?
- Does their material sound too good to be true?
- Did they list the sources of their information?
- Is the site medically reviewed, up to date and based on scientific research?
There are non-profit associations for people with psoriasis. At these sites, you can learn more about your condition and get the latest news and research. You will also be able to connect with others with psoriasis through in-person or online support groups or online forums hosted by the organization. Here are the main nonprofits related to psoriasis:
You can also consult medical organizations for skin diseases. Their websites provide information on psoriasis and other skin conditions. Try these:
Some people with psoriasis blog about their experiences living with a chronic skin condition. These sites can help you feel less alone when you read about other experiences similar to yours. You can also connect with others through the comments and share your experiences with each other.
Many of these blogs offer tips for living and thriving with psoriasis, but you should never see a doctor on these sites. Always consult your doctor before starting any new treatment or making any major lifestyle change related to your psoriasis.
Here are a few blogs that relate first-person experiences of people living with psoriasis:
These sites, like blogs, can help you connect with other people with psoriasis. Social media groups and hashtags can direct you to other helpful resources and provide tips for living with the skin condition.
Some of the organizations listed above also have social media pages. You can usually find links to their official accounts on their websites.
Facebook. Psoriasis Facebook Groups provide a forum where people with psoriasis can interact with each other. You can use the page to search and offer advice or just get in touch with other people who understand. You can find a smaller group in your area or join larger Facebook support pages. Here are some of the larger groups:
Reddit. This social media connects you with people with similar interests. Reddit organizes groups by topic. You can join a specific forum, on psoriasis for example, and then find subgroups dedicated to more targeted topics, such as medications or specific types of psoriasis. Start here: www.reddit.com/r/Psoriasis
Popular hashtags. To find additional content on psoriasis, you can search for #psoriasis, #psoriasiswarrior, #psoriasisawareness, or #psoriasiscommunity on social media platforms.
When using social media, always make sure that this information is reliable. Information and advice online may be false or potentially dangerous. Here are some basic rules:
- Check to the best of your ability that the account holder is who they say they are.
- Try to stick to verified accounts. Social media sites use specific symbols to inform users that a particular account is legitimate. It can be a check mark or a badge.
- Make sure the information you read is reliable. Ask your doctor anything you are not sure about.